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A holistic approach to Fragile X Syndrome integrated guidance for person-centred care.

We are delighted to share with you a published article which incorporates the views of Fragile X Society members that took part in a workshop at our Birmingham Conference last year. The article scopes proposed integrated guidance over the life course, including appendices of symptoms, comorbidities and referral options for FXS and Fragile X Premutation Associated Conditions.

A huge thank you to the articles authors Kirsten JohnsonAndrew C. StanfieldGaia ScerifAndrew McKechanieAngus ClarkeJonathan HerringKayla SmithHayley Crawford for producing a very thorough and information piece of work.


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