A holistic approach to Fragile X Syndrome integrated guidance for person-centred care.

We are delighted to share with you a published article which incorporates the views of Fragile X Society members that took part in a workshop at our Birmingham Conference last year. The article scopes proposed integrated guidance over the life course, including appendices of symptoms, comorbidities and referral options for FXS and Fragile X Premutation Associated Conditions.

A huge thank you to the articles authors Kirsten Johnson, Andrew C. Stanfield, Gaia Scerif, Andrew McKechanie, Angus Clarke, Jonathan Herring, Kayla Smith, Hayley Crawford for producing a very thorough and information piece of work.

https://onlinelibrary.wiley.com/doi/10.1111/jar.13214