School-aged boys with fragile X syndrome (FXS), the leading inherited cause of learning disability, often display marked delays in the...

What are the early skills which help children to develop language? An important part of learning language, for typically developing...

On Saturday 9th April, Craig McDonald (our Chairman), wife Gillian, and twin sons Stuart and Matthew embarked on a fitness challenge, in...

Reem Waines (one of our lovely board members) has for the second time taken on the #fragileXtraordinary challenge of climbing to Base...

We want you to tell us what it is like to be an adult with fragile X, and what your life is like. If you would like to take part, please...

Fragile X syndrome is the most common inherited cause of intellectual disability. People with fragile X syndrome often experience...

Summary of above video (written by Jane Oliver, Fragile X Society Support Worker) This article gives an overview about what is currently...

New Fragile X-premutation Service at St Mary’s Hospital, Manchester My name is Dr Iris Trender-Gerhard, and I am a consultant neurologist...

This week sees the launch of the 7 Days of Action Campaign, which aims to raise awareness of and bring about change for the people in...

Last year, Sophie Kashi joined us as our Communications Officer. More recently, she has taken on a full time role to oversee our...

In partnership with the Autism One Stop Shop in Inverness, Sandra, our lovely Scotland based Support and Development Worker, will be...

The way that our brains process visual information is very important, as it allows us to interpret and give meaning to the information...

This article has been republished with permission from the National Fragile X Foundation. Visit fragilex.org for more information. The...

Author: Colin Reilly Summary Edited by: Becky Hardiman About the survey This parent and teacher survey focussed on aspects of educational...

This is Part 2 of a series of reports about Colin Reilly’s Research. Author: Colin Reilly Summary edited by: Becky Hardiman About the...

On March 16th 2016 we called on Members of the National Assembly for Wales to better recognise and understand the needs of individuals...

The International Fragile X Alliance (IFXA), a global network of Fragile X parent support organizations, was launched on February 29,...

Part 1 of a Parent and Teacher Survey on Education. Research Author: Colin Reilly Summary Edited by: Becky Hardiman About the survey This...

The Fragile X Society team exhibited at the 2016 AKO Autism Expo on Saturday 12th March. In this blog, Becky (our CEO) gives an overview...

What’s it for: Dr Marcia Braden (educational psychologist with expertise in autism and Fragile X Syndrome) has released a new app. The...