​ National Health Service (NHS) policy requires that information that is provided about genetic conditions, for which prenatal diagnostic...

Background If you look at what we know about fragile X, most of it comes from research on older children, adolescents, and adults. So we...

The results of a study on seizure triggers in people with epilepsy and intellectual (learning) disability (ID), including people with...

I've never really considered myself a mountain climber, an adventurer or the sort of person to take on anything more challenging than a...

As some of you may be aware, Roche have just released an outline of the findings from their recent clinical trials in fragile X. ...

Part 1: The Story so far Dr Mark Hirst is a great friend to the society and had spoken at many family conferences. He is a molecular...

Female Carriers of Fragile X Syndrome Kim began by saying that women, carriers or not, are complex characters - add a few extra CGG...

November 2013 - Results of the Trial The results from the Phase IIb trial of AFQ056 in adults with Fragile X Syndrome were released to...