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Ready, Steady, GROW!
This spring, we're hoping to spread some sunshine by holding a 'grow your own sunflower' competition!
Apr 21, 2021
234 views
Melissa's March: 310,000 steps for Fragile X
Melissa shares son Hugo's diagnosis journey and her challenge of 10,000 steps each day of March 2021 to raise funds & awareness of Fragile X
Apr 19, 2021
256 views
Jackie and Matt's 2 million step challenge
Jackie and son, Matt, share their story of their travels on foot to raise funds and awareness of Fragile X
Apr 17, 2021
94 views
The Three Peaks - with a twist!
The Three Peaks - with a twist! Chris shares his remarkable fundraising (and fitness!) challenge.
Apr 12, 2021
155 views
Nip in the Bud video opportunity
A video request from Olivia Hird, Documentary Filmmaker for Nip in the Bud, which may be of interest to some of our Dads/male carers.
Apr 6, 2021
114 views
FUNdraising!
Please share your fundraising stories and photos with us!
Mar 25, 2021
67 views
Join us for our Easter Virtual Coffee Morning on Saturday 3 April at 10.30am
Join our Easter Virtual Coffee Morning to chat and connect with friends old and new!
Mar 23, 2021
46 views
Your child's sleep
Some strategies for supporting your child's sleep from Caroline Pringle, in the latest edition of her 'Snippets of Advice' blog series
Mar 10, 2021
486 views
Online Workshop from Birketts Solicitors: Tuesday 9 March 2021 at 7.30pm
'What legal means are available to protect your loved ones?' I am delighted to announce that on Tuesday 9 March 2021 at 7:30pm we will be...
Mar 9, 2021
59 views
Covid 19 vaccine prioritised for people with learning disabilities
All people on the Learning Disability Register to be prioritised for Covid-19 vaccine
Feb 24, 2021
180 views
Supporting siblings of children with Fragile X
Follow-up to our online workshop for parents, and additional resources.
Feb 23, 2021
424 views
A sibling's viewpoint: Anne and Nick's story
Anne shares her story of growing up with her brother Nick, who has Fragile X Syndrome
Feb 23, 2021
806 views
Spotlight on young siblings
Welcome to our new 'special edition' series of blog articles focusing on siblings. Here, Clare Kassa (CEO of Sibs) offers tips for parents.
Feb 23, 2021
216 views
Costello Medical
Digitally Developing and Diversifying the Fragile X Society: Costello Medical to develop our digital services
Feb 17, 2021
170 views
Going Back to school and How to Support Your Child
NEW: Download Caroline's presentation and video on 'Returning Safely to School' here.
Feb 17, 2021
363 views
Covid-19 Vaccinations
This week, I want to address the issue of vaccinations for people with Fragile X and their families. I know this is something that many...
Feb 17, 2021
254 views
'The best book I have read on Fragile X Syndrome'
A review of 'Mental Essence' by Emilie Weight from Jonathan Herring, Honorary Advisor to The Fragile X Society 'This book is the best...
Feb 2, 2021
724 views
Kunal Keeping Busy
Kunal’s story which was written before the current lockdown Kunal would like to share with you all what has been happening in his life...
Jan 28, 2021
122 views
Lola's Lockdown
Claire shared these lovely photos of her daughter Lola "Here we are again in lockdown number 3! We have found it a bit more of a...
Jan 26, 2021
259 views
Child Disability Payment pilot scheme areas in Scotland
In her statement to Parliament in November 2020, Shirley-Anne Somerville MSP, Cabinet Secretary for Social Security and Older People, set...
Jan 13, 2021
87 views
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