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The Neuro-GD Study: with Fragile X Coach Deno
Jo shares her story of son Dennis' participation in the Neuro-GD Study run by Dr Andy Stanfield and colleagues at the Patrick Wild Centre
Feb 24, 2022


The kindness of strangers
One of our members shared this story about her son's employment journey
Feb 15, 2022


Fraud
One of our members highlights a problem their family has experienced, in the hope it may prevent something similar happening to yours.
Jan 20, 2022


Kunal's favourite activities
Kunal wanted to share with you some of the things he's enjoyed doing over the last few months.
Jan 13, 2022


Coach Deno loses his Grandma Mini
Jo shares how her son, Dennis (known as Coach Deno) has coped with losing his beloved Grandma Mini
Jan 12, 2022


Dennis gets his vaccine
Jo shares how son, Dennis, who has Fragile X, got on with having his Covid-19 vaccination
May 25, 2021


Pedal Power: Theo's Cycling Adventures
Petra shares son Theo's cycling adventures during lockdown covering an amazing 3,278 miles!
Apr 27, 2021


Melissa's March: 310,000 steps for Fragile X
Melissa shares son Hugo's diagnosis journey and her challenge of 10,000 steps each day of March 2021 to raise funds & awareness of Fragile X
Apr 19, 2021


Nip in the Bud video opportunity
A video request from Olivia Hird, Documentary Filmmaker for Nip in the Bud, which may be of interest to some of our Dads/male carers.
Apr 6, 2021


A sibling's viewpoint: Anne and Nick's story
Anne shares her story of growing up with her brother Nick, who has Fragile X Syndrome
Feb 23, 2021
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