Apr 19, 2021Melissa's March: 310,000 steps for Fragile XMelissa shares son Hugo's diagnosis journey and her challenge of 10,000 steps each day of March 2021 to raise funds & awareness of Fragile X
Apr 6, 2021Nip in the Bud video opportunityA video request from Olivia Hird, Documentary Filmmaker for Nip in the Bud, which may be of interest to some of our Dads/male carers.
Feb 23, 2021A sibling's viewpoint: Anne and Nick's storyAnne shares her story of growing up with her brother Nick, who has Fragile X Syndrome
Feb 2, 2021'The best book I have read on Fragile X Syndrome'A review of 'Mental Essence' by Emilie Weight from Jonathan Herring, Honorary Advisor to The Fragile X Society 'This book is the best...
Jan 28, 2021Kunal Keeping BusyKunal’s story which was written before the current lockdown Kunal would like to share with you all what has been happening in his life...
Jan 26, 2021Lola's LockdownClaire shared these lovely photos of her daughter Lola "Here we are again in lockdown number 3! We have found it a bit more of a...
Aug 24, 2020A silver lining: Christian's lockdownIsabella shares her son Christian's lockdown activities.
Jun 18, 2020Coach Deno's Lockdown 30th BirthdayJo shares son Dennis' (Coach Deno's) 30th birthday celebrations in lockdown.
May 21, 2020Anne Donohoe: my journey as a therapist, educator and motherAnne's adult son, Andrew, has Fragile X Syndrome. Here, she tells us about their life in the Far East, and shares her blog and resources...