We have been absolutely blown away by our incredible supporters on Facebook who, this calendar year alone, have raised over £8,000! This...

This is the story of how my 47 year old brother-in-law Alec, who has Fragile X syndrome, completed a gruelling 400 mile cycle ride from...

A wedding is a fantastic time to celebrate and recognise the people and the things most special to you, and the opportunity to have a day...

Ian tells us why he ended up running a half marathon despite having done no training! “Anna, my wife, is a family member of the Fragile X...

My name is Paula and I am 27 years old. I am a keen runner and I run with my local running club. I have been running for 2 years. My...

"My name is Carmen, a fragile X carrier and mom to 3 gorgeous girls: Sofia who is 10 years old, Laura 7 and Beatriz 4. When Laura was 5...

Written by Campbell Alexander Ryan, now 25, was diagnosed with Fragile X Syndrome in 1997, after 2 long years trailing around doctors and...