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University of Rochester FXS Research Survey

Please take 20 minutes to share your opinions and feedback!

The Fragile X Society are delighted to be supporting a significant piece of research being led by the University of Rochester. Their work aims to identify the symptoms that have the greatest impact on the lives of individuals with Fragile X. And this will in turn, help to guide future research and therapeutic development for people with Fragile X. Thank you for your support,


If you are willing to participate in this research, you may do so by going online to and completing the survey.

If you have any questions please contact the Study Coordinators & Contact Emails:-


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