Jan 3, 2023Newborn bloodspot screeningAn update from the Chair of our Board of Directors, Kirsten Johnson
Oct 27, 2022Video Presentations from our Fragile X Society Conference 2022 in BirminghamVideos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.
Sep 14, 2021Kim's Marathon Challenge Kim is running a virtual half marathon to raise funds and awareness for Fragile X
Jan 15, 2015Understanding infants and toddlers with fragile X syndrome: New ResearchBackground If you look at what we know about fragile X, most of it comes from research on older children, adolescents, and adults. So we...
Sep 19, 2014Results of the Roche Trial of RO4917523 for Fragile X SyndromeAs some of you may be aware, Roche have just released an outline of the findings from their recent clinical trials in fragile X. ...
Nov 1, 2013Results of the Novartis AFQ056 Clinical Trial for Adults with Fragile X SyndromeNovember 2013 - Results of the Trial The results from the Phase IIb trial of AFQ056 in adults with Fragile X Syndrome were released to...