An update from the Chair of our Board of Directors, Kirsten Johnson

Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.

Kim is running a virtual half marathon to raise funds and awareness for Fragile X

Background If you look at what we know about fragile X, most of it comes from research on older children, adolescents, and adults. So we...

As some of you may be aware, Roche have just released an outline of the findings from their recent clinical trials in fragile X. ...

November 2013 - Results of the Trial The results from the Phase IIb trial of AFQ056 in adults with Fragile X Syndrome were released to...