In January my dance school – PAD (Power Academy of Dance) performed our bi-annual dance show, our chosen charity is the Fragile X Society....

We were delighted and so grateful to be invited to complete training about Fragile X for learning disability nursing students at Kingston...

Over the past 6 and a half years, we have been very fortunate to be able to run a dedicated Scottish Project to provide support to...

​This article summarises an interview with Lou (age 45) about her experiences of living with the Fragile X premutation, which was...

​This article summarises an interview with Brianna about her experiences of living with the Fragile X premutation, which was conducted as...

​This article summarises an interview with 'Grace' (age 45) about her experiences of living with the Fragile X premutation, which was...

As a 27 year old woman with fragile X syndrome the world of dating can often be difficult and overwhelming. So, I thought the show 'The...

It is only fairly recently that research has started focusing on people who have the Fragile X premutation, i.e. individuals who have a...

I have now been working at the Fragile X Society for 2 months and have been made very welcome. My mentor Wendy was absolutely brilliant...

Just over 11 years ago I was working in a special school in North London. A colleague I had job shared with came to me and said “Wendy, I...

We often only see the limitations of someone with Fragile X. And not what they can do. Yet, their special abilities could add tremendous...

Challenging behaviours, such as self-injurious behaviour and aggression, are a significant concern for some people with Fragile X...

Ash joined our family aged 5. My children were then 20, 18 and 14 and they regularly rode and helped out with a friend’s horses. When...

“I remember reading about Pre-implantation Genetic Diagnosis about 10 years ago. Long before we were parents. It was only available...

We are delighted to introduce our new Chair: Dr Kirsten Johnson. "I am married to Jonathan and we have three wonderful daughters, two of...

Effective communication forms an important part of a child’s daily life. For example, producing and understanding speech are criticalfor...

We are proud that we spend our funds responsibly and we constantly consider our services in light of our financial position. As you...

"Vishna is a very kind and loving individual, who is always thinking of other people. In the past Vishna has done fundraising for the...

We at the Fragile X Society are as grateful to Lewis Ross as his family and friends are proud of him for taking on a sponsored swimming...

Hi Girls, The first step is to figure out the usual costs of the things that you like the most (searching the internet works well). The...