The up-coming Rare Film Festival, will shine the light on the experiences of people with rare conditions (affecting fewer than 1 in 2000...

We are looking for an individual who can use their experience in grant writing to further the work of our passionate, small, national...

Welcome Kate, our new Administrative and Communications Coordinator! We are delighted to welcome Kate Williams to our team as...

Rather than sharing simple facts this Fragile X Awareness Day, we wanted to share a snapshot of real, family life with Fragile X...

Thank you to everyone who has requested packs to support your activities for Fragile X Awareness Day activities this Thursday, 10th...

"To make a real difference to the lives of disabled children, the Government must make them a priority, including by appointing a...

In this talk from our 2019 Conference, Dr Alusi discusses the diagnosis, treatment and management of FXTAS, as well as her clinic at the...

We are writing to give an update in relation to some of the recent chances to our staff team. You may have seen that we recently...

Thank you to all of you who joined us for our conference on 7th September at the University of Birmingham Medical School! We are so...

We are creating a new video to show for Fragile X Awareness Day (10th October). We need short clips of brothers and sisters talking...