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Farewell from Mark Smith
Director, Mark Smith, says goodbye to the Fragile X Society Board, and shares what inspired him to get involved.
Jan 5, 2023


Newborn bloodspot screening
An update from the Chair of our Board of Directors, Kirsten Johnson
Jan 3, 2023


Calling all members in Northern Ireland!
Would you like to help shape support for Fragile X families in Northern Ireland?
Nov 30, 2022


Our new legacy programme
Fragile X Society has teamed up with Freewills.co.uk to offer a free Will-writing service for our members.
Nov 15, 2022


The IGPrare European study
IGPrare European study recently explored experiences of families when sharing their diagnosis with family members: what were the results?
Nov 8, 2022


Calling all members in Wales!
Would you like to network with other members and families in Wales at a support group? Let us know if you'd like to join our meetings.
Nov 3, 2022


Video Presentations from our Fragile X Society Conference 2022 in Birmingham
Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.
Oct 27, 2022


Friendship Friday and Anti-Bullying Week 2022
Anti-Bullying Week is coordinated in England & Wales by the Anti-Bullying Alliance. It takes place 14 -18 Nov 2022 & its theme is Reach Out.
Oct 26, 2022


Christmas Cards now in stock!
Our Christmas Cards have arrived! Available from our online shop - please order early!
Oct 11, 2022


We need your videos for International Fragile X Awareness Day!
For International Fragile X Day on 10 Oct, FraXI is creating a new video. Please send in a video clip about what Fragile X means for you.
Sep 13, 2022
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