NEW: watch our animated video raising awareness of Fragile X and associated conditions, to mark Rare Disease Day 2023.

We are seeking to recruit a part-time Office Administrator to work at our office in Great Dunmow Essex. Find out more including how to apply

Director, Mark Smith, says goodbye to the Fragile X Society Board, and shares what inspired him to get involved.

An update from the Chair of our Board of Directors, Kirsten Johnson

Would you like to help shape support for Fragile X families in Northern Ireland?

Fragile X Society has teamed up with Freewills.co.uk to offer a free Will-writing service for our members.

IGPrare European study recently explored experiences of families when sharing their diagnosis with family members: what were the results?

Would you like to network with other members and families in Wales at a support group? Let us know if you'd like to join our meetings.

Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.

Anti-Bullying Week is coordinated in England & Wales by the Anti-Bullying Alliance. It takes place 14 -18 Nov 2022 & its theme is Reach Out.