Making changes to routines, plans or expectations more manageable: A new 'Flexible Scheduling
What is the project? An exciting project which aims to develop a new system to help families address rigidity in their child’s routines...
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- Jan 10, 2019
Research Update: Experiences of women with the Fragile X premutation
It is only fairly recently that research has started focusing on people who have the Fragile X premutation, i.e. individuals who have a...
1,699 views
- Nov 27, 2018
Challenging Behaviours in Fragile X Syndrome: Investigating Environmental and Physiological Influenc
Challenging behaviours, such as self-injurious behaviour and aggression, are a significant concern for some people with Fragile X...
151 views
- Nov 16, 2018
Pragmatic communication by boys with fragile X syndrome: How do symptoms of autism spectrum and atte
Effective communication forms an important part of a child’s daily life. For example, producing and understanding speech are criticalfor...
229 views
- May 31, 2016
Health and Reproductive Features Related to Being a Female Fragile X Carrier
Introduction For a long time, it has been known that fragile X syndrome could be passed to future generations from people with smaller...
2,759 views
- May 26, 2016
Trialing a New Intervention to Help Children with Fragile X with Spoken Language
School-aged boys with fragile X syndrome (FXS), the leading inherited cause of learning disability, often display marked delays in the...
336 views
- May 11, 2016
Face Scanning and language development
What are the early skills which help children to develop language? An important part of learning language, for typically developing...
219 views
- May 9, 2016
Easy Read Survey for Adults with Fragile X
We want you to tell us what it is like to be an adult with fragile X, and what your life is like. If you would like to take part, please...
65 views
- May 4, 2016
Does stress influence memory, in boys with Fragile X?
Fragile X syndrome is the most common inherited cause of intellectual disability. People with fragile X syndrome often experience...
238 views
- Apr 26, 2016
FXTAS: Who, What, When, How?
Summary of above video (written by Jane Oliver, Fragile X Society Support Worker) This article gives an overview about what is currently...
982 views