The CONNECT-X Study
Efficacy and safety of cannabidiol-based hand gel (ZYN002) for young people with Fragile X Syndrome following a recent study.
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Jan 3, 2023
Newborn bloodspot screening
An update from the Chair of our Board of Directors, Kirsten Johnson
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Mar 8, 2019
Making changes to routines, plans or expectations more manageable: A new 'Flexible Scheduling
What is the project? An exciting project which aims to develop a new system to help families address rigidity in their child’s routines...
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Jan 10, 2019
Research Update: Experiences of women with the Fragile X premutation
It is only fairly recently that research has started focusing on people who have the Fragile X premutation, i.e. individuals who have a...
1,860 views
Nov 27, 2018
Challenging Behaviours in Fragile X Syndrome: Investigating Environmental and Physiological Influenc
Challenging behaviours, such as self-injurious behaviour and aggression, are a significant concern for some people with Fragile X...
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Nov 16, 2018
Pragmatic communication by boys with fragile X syndrome: How do symptoms of autism spectrum and atte
Effective communication forms an important part of a child’s daily life. For example, producing and understanding speech are criticalfor...
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May 31, 2016
Health and Reproductive Features Related to Being a Female Fragile X Carrier
Introduction For a long time, it has been known that fragile X syndrome could be passed to future generations from people with smaller...
3,258 views
May 26, 2016
Trialing a New Intervention to Help Children with Fragile X with Spoken Language
School-aged boys with fragile X syndrome (FXS), the leading inherited cause of learning disability, often display marked delays in the...
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May 11, 2016
Face Scanning and language development
What are the early skills which help children to develop language? An important part of learning language, for typically developing...
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May 9, 2016
Easy Read Survey for Adults with Fragile X
We want you to tell us what it is like to be an adult with fragile X, and what your life is like. If you would like to take part, please...
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