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The CONNECT-X Study
Efficacy and safety of cannabidiol-based hand gel (ZYN002) for young people with Fragile X Syndrome following a recent study.
Feb 1, 2023


Newborn bloodspot screening
An update from the Chair of our Board of Directors, Kirsten Johnson
Jan 3, 2023


Making changes to routines, plans or expectations more manageable: A new 'Flexible Scheduling
What is the project? An exciting project which aims to develop a new system to help families address rigidity in their child’s routines...
Mar 8, 2019


Research Update: Experiences of women with the Fragile X premutation
It is only fairly recently that research has started focusing on people who have the Fragile X premutation, i.e. individuals who have a...
Jan 10, 2019


Challenging Behaviours in Fragile X Syndrome: Investigating Environmental and Physiological Influenc
Challenging behaviours, such as self-injurious behaviour and aggression, are a significant concern for some people with Fragile X...
Nov 27, 2018


Pragmatic communication by boys with fragile X syndrome: How do symptoms of autism spectrum and atte
Effective communication forms an important part of a child’s daily life. For example, producing and understanding speech are criticalfor...
Nov 16, 2018


Health and Reproductive Features Related to Being a Female Fragile X Carrier
Introduction For a long time, it has been known that fragile X syndrome could be passed to future generations from people with smaller...
May 31, 2016


Trialing a New Intervention to Help Children with Fragile X with Spoken Language
School-aged boys with fragile X syndrome (FXS), the leading inherited cause of learning disability, often display marked delays in the...
May 26, 2016


Face Scanning and language development
What are the early skills which help children to develop language? An important part of learning language, for typically developing...
May 11, 2016


Easy Read Survey for Adults with Fragile X
We want you to tell us what it is like to be an adult with fragile X, and what your life is like. If you would like to take part, please...
May 9, 2016
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