Our Fragile X Facts
You will often see lists of facts about Fragile X Syndrome being circulated, detailing medicalised information focusing on the challenges...
Search
- Mar 7, 2019
A funny thing happened on the way to Homebase
Jeanie Kemp discovered she was a fragile X carrier only after the birth of her daughter Jessica’s first child James. James had lots of...
134 views
- Feb 13, 2019
Video: Identifying and meeting the health needs of people with Fragile X Syndrome
We were delighted and so grateful to be invited to complete training about Fragile X for learning disability nursing students at Kingston...
98 views
- Jan 29, 2019
Celebrating Our Achievements in Scotland, as the Project Comes to an End.
Over the past 6 and a half years, we have been very fortunate to be able to run a dedicated Scottish Project to provide support to...
187 views
- Jan 24, 2019
"I wanted to meet somebody who would treat me like a princess": Emily's experience of
As a 27 year old woman with fragile X syndrome the world of dating can often be difficult and overwhelming. So, I thought the show 'The...
943 views
- Jan 10, 2019
Welcome, Caroline! Our New Families and Professionals Advisor
I have now been working at the Fragile X Society for 2 months and have been made very welcome. My mentor Wendy was absolutely brilliant...
131 views
- Nov 27, 2018
Wendy's Retirement: Farewell messages & wise words
Just over 11 years ago I was working in a special school in North London. A colleague I had job shared with came to me and said “Wendy, I...
219 views
- Nov 16, 2018
Ash and Tony's Story
Ash joined our family aged 5. My children were then 20, 18 and 14 and they regularly rode and helped out with a friend’s horses. When...
73 views
- Nov 16, 2018
Preimplantation Genetic Diagnosis: A Family Story
“I remember reading about Pre-implantation Genetic Diagnosis about 10 years ago. Long before we were parents. It was only available...
135 views
- Nov 16, 2018
Welcoming our new Chairperson!
We are delighted to introduce our new Chair: Dr Kirsten Johnson. "I am married to Jonathan and we have three wonderful daughters, two of...
144 views