• Home

  • About Fragile X

    • Fragile X and Autism
    • Diagnosis
    • Genetic Testing
    • Carriers
    • Personal Stories
    • Resources
  • Help & Support

    • Membership
    • Snippets of Advice Blog
    • Case Studies
    • Events
    • Fragile X Society Conference 2022
    • Feedback
  • Get Involved

    • Make a Donation
    • Leaving a Legacy
    • Friends of Fragile X
    • 100+ Club
    • Corporate Support
    • Fundraising
    • Become a Media Volunteer
  • About Us

    • Our News
    • Meet the Team
    • Job Vacancies
    • Useful Links
    • Fragile X International
  • Research

    • Take Part
    • Research Policy
  • Contact Us

  • Shop

  • More

    Use tab to navigate through the menu items.
    RGB Logo.png
    Icons-27.png
    Donate
    Facebook

    Call our helpline: 

       01371 875100

    • Home

    • About Fragile X

      • Fragile X and Autism
      • Diagnosis
      • Genetic Testing
      • Carriers
      • Personal Stories
      • Resources
    • Help & Support

      • Membership
      • Snippets of Advice Blog
      • Case Studies
      • Events
      • Fragile X Society Conference 2022
      • Feedback
    • Get Involved

      • Make a Donation
      • Leaving a Legacy
      • Friends of Fragile X
      • 100+ Club
      • Corporate Support
      • Fundraising
      • Become a Media Volunteer
    • About Us

      • Our News
      • Meet the Team
      • Job Vacancies
      • Useful Links
      • Fragile X International
    • Research

      • Take Part
      • Research Policy
    • Contact Us

    • Shop

    • More

      Use tab to navigate through the menu items.
      • All Posts
      • Snippets of Advice
      • Research
      • Inspiring Fundraising Stories
      • Personal Stories
      • Charity News
      • Real Life Stories
      Search
      Our Fragile X Facts
      • Mar 14, 2019

      Our Fragile X Facts

      You will often see lists of facts about Fragile X Syndrome being circulated, detailing medicalised information focusing on the challenges...
      226 views
      A funny thing happened on the way to Homebase
      • Mar 7, 2019

      A funny thing happened on the way to Homebase

      Jeanie Kemp discovered she was a fragile X carrier only after the birth of her daughter Jessica’s first child James. James had lots of...
      134 views
      Video: Identifying and meeting the health needs of people with Fragile X Syndrome
      • Feb 13, 2019

      Video: Identifying and meeting the health needs of people with Fragile X Syndrome

      We were delighted and so grateful to be invited to complete training about Fragile X for learning disability nursing students at Kingston...
      98 views
      Celebrating Our Achievements in Scotland, as the Project Comes to an End.
      • Jan 29, 2019

      Celebrating Our Achievements in Scotland, as the Project Comes to an End.

      Over the past 6 and a half years, we have been very fortunate to be able to run a dedicated Scottish Project to provide support to...
      187 views
      "I wanted to meet somebody who would treat me like a princess": Emily's experience of
      • Jan 24, 2019

      "I wanted to meet somebody who would treat me like a princess": Emily's experience of

      As a 27 year old woman with fragile X syndrome the world of dating can often be difficult and overwhelming. So, I thought the show 'The...
      943 views
      Welcome, Caroline! Our New Families and Professionals Advisor
      • Jan 10, 2019

      Welcome, Caroline! Our New Families and Professionals Advisor

      I have now been working at the Fragile X Society for 2 months and have been made very welcome. My mentor Wendy was absolutely brilliant...
      131 views
      Wendy's Retirement: Farewell messages & wise words
      • Nov 27, 2018

      Wendy's Retirement: Farewell messages & wise words

      Just over 11 years ago I was working in a special school in North London. A colleague I had job shared with came to me and said “Wendy, I...
      219 views
      Ash and Tony's Story
      • Nov 16, 2018

      Ash and Tony's Story

      Ash joined our family aged 5. My children were then 20, 18 and 14 and they regularly rode and helped out with a friend’s horses. When...
      73 views
      Preimplantation Genetic Diagnosis: A Family Story
      • Nov 16, 2018

      Preimplantation Genetic Diagnosis: A Family Story

      “I remember reading about Pre-implantation Genetic Diagnosis about 10 years ago. Long before we were parents. It was only available...
      135 views
      Welcoming our new Chairperson!
      • Nov 16, 2018

      Welcoming our new Chairperson!

      We are delighted to introduce our new Chair: Dr Kirsten Johnson. "I am married to Jonathan and we have three wonderful daughters, two of...
      144 views
      1
      234
      Icon-Colours-11.png

      Become part of our growing community!

      Join For Free
      • Facebook
      • Twitter
      • YouTube
      • Instagram

      Accessibility

      Website Feedback

      Cookie Policy
      Privacy Policy
      Ethical Working Policy
      Site Map
      Disclaimer
      Terms of Use

      COVID-19

      Logo_White.png

      Copyright © 2021 The Fragile X Society

      Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England

      Charity Registration SC047332 - The Fragile X Society Registered Charity in Scotland
      Company registration number 6724061 - Registered office: The Chestnuts, 4 Stortford Road, Great Dunmow, Essex CM6 1DA