You will often see lists of facts about Fragile X Syndrome being circulated, detailing medicalised information focusing on the challenges...

Jeanie Kemp discovered she was a fragile X carrier only after the birth of her daughter Jessica’s first child James. James had lots of...

We were delighted and so grateful to be invited to complete training about Fragile X for learning disability nursing students at Kingston...

Over the past 6 and a half years, we have been very fortunate to be able to run a dedicated Scottish Project to provide support to...

As a 27 year old woman with fragile X syndrome the world of dating can often be difficult and overwhelming. So, I thought the show 'The...

I have now been working at the Fragile X Society for 2 months and have been made very welcome. My mentor Wendy was absolutely brilliant...

Just over 11 years ago I was working in a special school in North London. A colleague I had job shared with came to me and said “Wendy, I...

Ash joined our family aged 5. My children were then 20, 18 and 14 and they regularly rode and helped out with a friend’s horses. When...

“I remember reading about Pre-implantation Genetic Diagnosis about 10 years ago. Long before we were parents. It was only available...

We are delighted to introduce our new Chair: Dr Kirsten Johnson. "I am married to Jonathan and we have three wonderful daughters, two of...