The anti-bullying alliance have released a booklet for anti-bullying week. Covering how you can take part and timeline for the week.

Danielle and Isla are running the Garioch 5k. This is their story on why they have chosen the Fragile X Society to support. The Society...

Alison Field, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week: I do...

Freya Woods - Interview Please watch this inspiring interview between Pete Richardson and Freya Woods for Fragile X Awareness Day. Thank...

1. If the school your child goes to has provided a transition book, then try to look at it regularly in the run up to returning...

“Are you are a Fragile X premutation carrier and if so, would you like to take part in some ground breaking research? This study is being...

Freya has written a lovely story in her own words to help raise awareness about people with learning disabilities. I’m not less than you....

Kunal has kindly shared some of the days out he has been on recently and we have enjoyed reading and seeing what a great time he had. My...

Thank you to all who have participated in University of Surrey’s research on social and emotional wellbeing in women with the fragile X...

Behavioural and Emotional Outcomes in individuals with Neurodevelopmental Disorders (BEOND) Study About the study The Cerebra Network for...

Today I’d like to share some really exciting news about plans to develop a Specialist Fragile X Hub in Leicester and how you can be...

Before we know it, the school summer holidays will be here, and it will be another change of routine for your child. It will then be the...

I wanted to take this opportunity of saying goodbye to you all as I will be retiring at the end of the month, my last day at work being...

An update from Dr Natali Bozhilova on international survey on pain experience in people with Prader-Willi, Williams and Fragile X syndromes

In week 5 of her blog series on sensory issues, Caroline (Families & Professionals Advisor, child enquiries) brings it all together.

In week 4 of her series on sensory issues, Caroline (Families & Professionals Advisor, child enquiries) covers balance and body awareness.

In week 3 of her blog series on sensory issues, Caroline (Families and Professionals Advisor for child enquiries) covers taste and smell.