We were delighted to see and welcome so many of you to our Fragile X Society Conference held at the Priory Rooms Conference in Birmingham...

We would like to say a massive thank you to Anna, Pippa & Daisy.  Girls this is such an amazing achievement, and we are all so proud of...

Dennis is passionate about movies and coaching football. For him watching movie in cinema, TV, computer, laptop, IPad and phone are...

Ryan’s parents kindly shared his amazing achievement with us and we wanted to share it with you all. "Ryan is 24 years old and has a full...

Anna and two of her friends, Pippa and Daisy are challenging themselves to a 2-day, 22 mile, unaccompanied, self-sufficient hiking and...

If you are interested, please see full information in starter pack below:-

Andy and Cheryl are completing a series of walks and runs in Edinburgh, Glasgow, Aberdeen, Dundee and the Scottish Half Marathon to raise...

Gemma & Andrew and all their friends are taking part in the Great Midlands Fun Run in support of the Fragile X Society for their...

We are delighted to share a request from DCP group. The Charity for Disabled Children to support their new campaign, Fight For Our...

Phil Malsbury has secured a place in this year's 2024 London Marathon, and has chosen to raise funds for the Fragile X Society. Here, he...

We went to New York on the east coast. I enjoyed seeing New York City. Our cruise ship was called Norwegian Getaway. We boarded in New...

A Tiagon MMA Club, held a local charity fight night event and chose to support the Fragile X Society as their main charity. Fragile X was...

Project Description: Emily Farran and Laura Cristescu, in collaboration with Jo Van Herwegen, Liz Pellicano and Gaia Scerif are working...

We are delighted to share with you a published article which incorporates the views of Fragile X Society members that took part in a...

Please take 20 minutes to share your opinions and feedback! The Fragile X Society are delighted to be supporting a significant piece of...

If you haven’t done so already, please do register you attendance as we anticipate tickets will be gone soon…-...

This year Safer Internet Day will take place on Tuesday 6th February. The day aims to focus on the online safety and wellbeing of...

In November, I went to Gembloux, Belgium to represent the Fragile X Society UK at Fragile X International’s second annual conference....