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Rhys & Owen MMA Charity Event
A Tiagon MMA Club, held a local charity fight night event and chose to support the Fragile X Society as their main charity. Fragile X was...
Mar 28, 2024


Shape Research, Change Lives
Project Description: Emily Farran and Laura Cristescu, in collaboration with Jo Van Herwegen, Liz Pellicano and Gaia Scerif are working...
Mar 5, 2024


A holistic approach to Fragile X Syndrome integrated guidance for person-centred care.
We are delighted to share with you a published article which incorporates the views of Fragile X Society members that took part in a...
Feb 29, 2024


University of Rochester FXS Research Survey
Please take 20 minutes to share your opinions and feedback! The Fragile X Society are delighted to be supporting a significant piece of...
Feb 28, 2024


Feb 16, 2024


Feb 8, 2024


Fragile X Conference 16th March 2024
If you haven’t done so already, please do register you attendance as we anticipate tickets will be gone soon…-...
Feb 8, 2024


Safer Internet Day
This year Safer Internet Day will take place on Tuesday 6th February. The day aims to focus on the online safety and wellbeing of...
Feb 1, 2024


Fragile X International Conference 17-19th November 2023 - by Anne Eccleshall
In November, I went to Gembloux, Belgium to represent the Fragile X Society UK at Fragile X International’s second annual conference....
Jan 4, 2024


Fragile X Specialised Counselling Service
Dear Fragile X Community, As we approach the festive season, I find myself reflecting on the strength and resilience that binds our...
Dec 19, 2023


Isabel's Story
Having done the Great South Run once before, I was keen to do it again and this time raise some money for charity. Which charity was...
Dec 7, 2023


Tips for the festive season
With Christmas approaching, we can see many changes around us. From decorations and lights appearing, to Christmas foods and gifts in the...
Dec 5, 2023


A Rare Find is released this Sunday, 5th November 2023
The UK currently screens newborns for just 9 rare but serious conditions whereas the USA tests for up to 59. Local filmmaker John Lee...
Nov 1, 2023


Anti-Bullying Week Monday 13th – Friday 17th November 2023
The anti-bullying alliance have released a booklet for anti-bullying week. Covering how you can take part and timeline for the week.
Oct 26, 2023


Danielle & Isla's Fundraiser for Fragile X Society
Danielle and Isla are running the Garioch 5k. This is their story on why they have chosen the Fragile X Society to support. The Society...
Oct 19, 2023


Anti-Bullying Week: 13 – 17th November 2023
Alison Field, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week: I do...
Oct 11, 2023


Fragile X Awareness Day
Freya Woods - Interview Please watch this inspiring interview between Pete Richardson and Freya Woods for Fragile X Awareness Day. Thank...
Oct 10, 2023


Top tips for returning to school… by Alison Field
1. If the school your child goes to has provided a transition book, then try to look at it regularly in the run up to returning...
Aug 10, 2023
Fragile X Premutation Carrier
“Are you are a Fragile X premutation carrier and if so, would you like to take part in some ground breaking research? This study is being...
Aug 9, 2023


Freya's Story
Freya has written a lovely story in her own words to help raise awareness about people with learning disabilities. I’m not less than you....
Jul 27, 2023
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