Anna and two of her friends, Pippa and Daisy are challenging themselves to a 2-day, 22 mile, unaccompanied, self-sufficient hiking and...

If you are interested, please see full information in starter pack below:-

Andy and Cheryl are completing a series of walks and runs in Edinburgh, Glasgow, Aberdeen, Dundee and the Scottish Half Marathon to raise...

Gemma & Andrew and all their friends are taking part in the Great Midlands Fun Run in support of the Fragile X Society for their...

We are delighted to share a request from DCP group. The Charity for Disabled Children to support their new campaign, Fight For Our...

Phil Malsbury has secured a place in this year's 2024 London Marathon, and has chosen to raise funds for the Fragile X Society. Here, he...

We went to New York on the east coast. I enjoyed seeing New York City. Our cruise ship was called Norwegian Getaway. We boarded in New...

A Tiagon MMA Club, held a local charity fight night event and chose to support the Fragile X Society as their main charity. Fragile X was...

Project Description: Emily Farran and Laura Cristescu, in collaboration with Jo Van Herwegen, Liz Pellicano and Gaia Scerif are working...

We are delighted to share with you a published article which incorporates the views of Fragile X Society members that took part in a...

Please take 20 minutes to share your opinions and feedback! The Fragile X Society are delighted to be supporting a significant piece of...

If you haven’t done so already, please do register you attendance as we anticipate tickets will be gone soon…-...

This year Safer Internet Day will take place on Tuesday 6th February. The day aims to focus on the online safety and wellbeing of...

In November, I went to Gembloux, Belgium to represent the Fragile X Society UK at Fragile X International’s second annual conference....

Dear Fragile X Community, As we approach the festive season, I find myself reflecting on the strength and resilience that binds our...

Having done the Great South Run once before, I was keen to do it again and this time raise some money for charity. Which charity was...

With Christmas approaching, we can see many changes around us. From decorations and lights appearing, to Christmas foods and gifts in the...

The UK currently screens newborns for just 9 rare but serious conditions whereas the USA tests for up to 59. Local filmmaker John Lee...