We would like to say a massive thank you to Stephen, Keith and Milo.   Stephen who has Fragile X syndrome, decided he would love to raise...

Alison Field, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week: I hope...

Thank you to Adam, who has kindly chosen to fundraise for the Fragile X Society. Adam chose to support the Society due to his nephew...

For Fragile X Awareness day on the 10th of October 2024. Our aim was to create as much publicity and raise as much awareness of Fragile X...

The University of Surrey is currently conducting a research study that aims to explore the experiences of parents and carers who have...

Fragile X Awareness Day - 10/10/24 This year, the main feature for our Fragile X Awareness Day, is an interview between Pete Richardson...

To help raise awareness, we are asking people if they could kindly either update their Facebook profile or cover picture with the Fragile...

Last month we received a lovely story from one of our members Michael, who was taking part in The Great North run, to raise awareness and...

This research projects aims to understand what factors predict the type and pattern of sleep problems that children with...

We wanted to share with you a new policy report  from the Council for Disabled Children and Disabled Children's Partnership. The report...

Today, the Children’s Charities Coalition is launching our annual report on children's services spending, in partnership with Pro-Bono...

TouchFX study  - Touch sensitivity in fragile X syndrome Researchers from the Patrick Wild Centre are currently looking for volunteers to...

Dr Gaia Scerif (Uni of Oxford), Dr Emily Farran (Uni of Surrey), and Dr Jo Van Herwegen (UCL) are currently looking for volunteers (4-9...

University of Surrey are looking to improve a free teacher training resource. This resource will be focused on supporting children with...

Michael kindly shared his story of why he chose to support the Fragile X Society.

Shape Research, Change Lives are setting priorities in genetic syndrome research. Below we have added some of their supporting documents....

Sensory Help Now have issued a free download to a Summer Sensory Survival Kit. If you would like a copy please visit the link below to...

As we have now entered the summer term, thoughts for many will be on preparing for the new academic year. For some children, things may...

We would like to say a BIG thank you to Shelagh and her supporters who took part in the Aberdeen Kilt Walk on the 2nd June 2024. Shelagh...

We would like to say a massive thank you to Gemma, Andy, their son and all of their friends who took part in the Sutton Coldfield fun run...