Dasha runs the London Marathon
Dasha Gold has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.
Dasha runs the London Marathon
Down Syndrome Act 2022
Anti-Bullying Week: 14 - 18 November 2022
Jess runs the London Marathon
Our family trip to the NFXF Conference, San Diego
Five simple tips for hot weather
Annie runs the Lisbon Marathon
Fragile X and FXTAS: my family's story
Hello from Northern Ireland!
Light up a landmark for Fragile X Awareness Day on 10 October!
Changes to the benefits system in Scotland
Dad's FXTAS journey
Eating and mealtimes
Highlights from our Family Weekend at Thomley
Online safety
Luke and Jas's marathon week for Fragile X
Mencap's Big Learning Disability Survey
Jonathan and Darcy run the Oxford Town and Gown
Kunal's holiday to Dubai
Update on inclusive terminology for Fragile X conditions