Comments by Dr Mark Hirst & Professor Jeremy Turk, summarised by Becky Hardiman Recent results have been released about a trial of a new...

As the new Chair of the Fragile X Society, I thought I would quickly introduce myself via a short blog post, which I hope you find both...

Earlier this month Alison Livingston, Siobhan Boyne, and Jackie Watt organised a charity Zumbathon which was held at the Aberdeen Sports...

Christmas can be a very exciting time; it is full of new and different activities, decorations and flashing lights, and (in my household...

We need your help! It is really important to us that we provide the best support possible to you. In order to do that, we want your...

We are delighted to be working with Red Dog again this year to bring you some gorgeous awareness day tshirts! The tops are a great way of...

New Research: Eye Gaze in Fragile X Syndrome Fragile X syndrome is associated with social difficulties and an increased prevalence of...

10th October is Eurpoean Fragile X Awareness Day, and we need your help to get the message out to the public! Last year we raised...

​​​ Renny Krupinski and his wife and Kaitlin Howard are raising funds and awareness for Fragile X through their play, The Alphabet Girl...

Reading Development in Fragile X Syndrome The ability to read is critical to the success of individuals with learning disabilities, as it...

Introduction Figure 1. An fMRI brain scan looking at activation in the brain of a person with the Fragile X Premutation (research by...

​ We all feel a little bit anxious when we meet new people for the first time. However, for individuals with fragile X, meeting new...

Jonathan Cohen (Medical Director, Fragile X Alliance Clinic), Rashelle Cohen (Neurodevelopmental Optometrist), Michael Cohen (Expert by...

Written by Sarah and Lucie 25 Years Ago Twenty five years ago Fragile X was not in our orbit but it entered our world in the summer of...

Written by Elizabeth My name is Elizabeth. I am a pre-mutation carrier of Fragile X Syndrome, and I have 2 little girls with the full...

Written by Kerry Oh those early days… When I first got my eldest boy George, then 2, diagnosed with Fragile X Syndrome, I had no clue...

Written by Paula Let’s go right back to the beginning for my little family. I shall start off by introducing ourselves. I am Paula...

Written by Kathryn 1990 Our father was seventy-four at the time and looking after two sons, Ian and Howard (aged forty-nine and forty),...

Written by Hannah and Jo There’s something very humbling about setting about writing a story that comes from deep within the heart; and...

Written by Janine 1990 Geoffrey had been just diagnosed. In the days before the internet, let alone Facebook, I knew no one who had a...