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25 Years On: Kerry's Story
Written by Kerry Oh those early days… When I first got my eldest boy George, then 2, diagnosed with Fragile X Syndrome, I had no clue...
May 1, 2015


25 Years On: Paula's Family Story
Written by Paula Let’s go right back to the beginning for my little family. I shall start off by introducing ourselves. I am Paula...
May 1, 2015


25 Years On: Supporting Siblings
Written by Kathryn 1990 Our father was seventy-four at the time and looking after two sons, Ian and Howard (aged forty-nine and forty),...
May 1, 2015


25 Years On: I Love My Job!
Written by Hannah and Jo There’s something very humbling about setting about writing a story that comes from deep within the heart; and...
May 1, 2015


25 Years On: Janine's Family Story
Written by Janine 1990 Geoffrey had been just diagnosed. In the days before the internet, let alone Facebook, I knew no one who had a...
May 1, 2015


25 Years On: Martin's First Flat
Written by Jim Martin, our youngest child, was diagnosed in Edinburgh with Fragile X Syndrome when he was nine years old, but it was...
May 1, 2015
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