Diana shares her experiences of life during lockdown with her son Raphael, who has Fragile X.

Julie shares the story of her keep-active dance videos featuring her son, Danny, who has Fragile X.

Birthday celebrations in Lockdown

Heather shares her experiences of growing up with brother James, who has Fragile X

Podcasts are a fantastic way to get informed on the go. We are delighted to be able to signpost you to some fantastic Fragile X-related...

Phoebe created this wonderful documentary about her family's Fragile X diagnosis story. Thank you so much Phoebe for sharing this...

In a recent article in the Archives of Disease in Childhood (ADC), Paula shared her experiences of growing up with Fragile X Syndrome....

My sister Raana recently made a film about her everyday life that was shown to an audience of 130 people at a conference in London. This...

Hello to all you lovely people, I’m Matt #fragilextraveller and with the help of my Mum & Nan I have been on an amazing holiday to...

What I am going to write - what has happened – has made me the person I am today. In this piece jean reflects on her children growing up...