Heather shares her experiences of growing up with brother James, who has Fragile X

Podcasts are a fantastic way to get informed on the go. We are delighted to be able to signpost you to some fantastic Fragile X-related...

Phoebe created this wonderful documentary about her family's Fragile X diagnosis story. Thank you so much Phoebe for sharing this...

In a recent article in the Archives of Disease in Childhood (ADC), Paula shared her experiences of growing up with Fragile X Syndrome....

My sister Raana recently made a film about her everyday life that was shown to an audience of 130 people at a conference in London. This...

Hello to all you lovely people, I’m Matt #fragilextraveller and with the help of my Mum & Nan I have been on an amazing holiday to...

What I am going to write - what has happened – has made me the person I am today. In this piece jean reflects on her children growing up...

In this piece Kunal shares about how his local art group helps him I like Artability - it helps me to enjoy spending time with my friends...

A mother writes about her daughter’s journey from childhood diagnosis, through school and college and into adult life and employment, and...

Written by Sarah and Lucie 25 Years Ago Twenty five years ago Fragile X was not in our orbit but it entered our world in the summer of...