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Barriers to participating in clinical trials
What are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?
Mar 24, 2022


Road to Recovery Project: overview, update and final recruitment call
Carers and their children with learning disabilities invited to share their experiences of COVID-19 pandemic using fun, inclusive activities
Mar 16, 2022


Whole Genome Sequencing (WGS) to detect repeat expansion disorders including Fragile X Syndrome
New research paper published in The Lancet which demonstrates that whole genome sequencing (WGS) can quickly detect neurological conditions
Feb 24, 2022


Measuring electrical activity in the brain may help in development of drug therapies for Fragile X
Measuring electrical activity in the brain may help in development of drug therapies for Fragile X in new study from the Patrick Wild Centre
Feb 23, 2022


Social Interactions in Children with Fragile X Syndrome and Other Neurodevelopmental Conditions
Social Interactions in Children with FXS and Other Neurodevelopmental Conditions: a research update
Jul 14, 2020


Attention, Learning and Memory in young people with Fragile X syndrome: Does social context matter?
Attention, Learning and Memory in young people with fragile X syndrome: Does social context matter?
Jul 2, 2020


Fragile X Premutation Associated Conditions (FXPAC) Statement
A European Fragile X Network meeting discussed the term FXAND and recent research on conditions affecting Fragile X premutation carriers.
Jan 30, 2020


The Fragile X Community's Views on Screening
Recently, Dr Felicity Boardman and colleagues from Warwick Medical School conducted a study to investigate the implications of genetic...
Nov 28, 2019


Are you interested in participating in a research project? If so, we'd love to hear from you!
We have been supporting Dr Nermin Khalil in recruiting for her study, “Cognitive Emotional Dysregulation of FMR1 Premutation Carrier...
Nov 26, 2019


Understanding and Intervening with Emotional Outbursts: Research Update, Dr Kate Woodcock
In this Research Update, Dr Kate Woodcock discusses the work of her research group which aims to understand syndrome specific factors...
Sep 17, 2019
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