IGPrare European study recently explored experiences of families when sharing their diagnosis with family members: what were the results?

In April 2022, the term ‘mental retardation’ was officially removed from the expanded name of FMR1, and more inclusive names adopted.

New and inclusive terminology to be adopted in scientific and clinical literature, improving respect for neurodiversity

What are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?

Carers and their children with learning disabilities invited to share their experiences of COVID-19 pandemic using fun, inclusive activities

New research paper published in The Lancet which demonstrates that whole genome sequencing (WGS) can quickly detect neurological conditions

Measuring electrical activity in the brain may help in development of drug therapies for Fragile X in new study from the Patrick Wild Centre

Social Interactions in Children with FXS and Other Neurodevelopmental Conditions: a research update

Attention, Learning and Memory in young people with fragile X syndrome: Does social context matter?

A European Fragile X Network meeting discussed the term FXAND and recent research on conditions affecting Fragile X premutation carriers.