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The Disabled Children’s Partnership Fight for Ordinary Campaign: call for stories
What is Fight for Ordinary? In mid-July, the Disabled Children’s Partnership will be launching the Fight for Ordinary campaign. Fight For...
Jul 3, 2025
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Fragile X Syndrome Workshop Invitation
We are delighted to let you know about a forthcoming International Workshop on Fragile X Syndrome on June 20th 2025 in Padua, organised...
May 14, 2025
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Dr Andrew Stanfield - Clinical Research
In March 2025, we hosted our Edinburgh conference for the second consecutive year. The event was highly successful. We extend our...
May 1, 2025
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FXTAS - Dr Sundus Alusi
Thank you all for attending the conference and for playing such an important role in making it a truly meaningful and inspiring event....
May 1, 2025
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28th February 2025 - Rare Disease Day
Increasing awareness and driving change for the 300 million individuals globally affected by a rare disease, along with their families...
Feb 26, 2025
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Glasgow Bakers
Steve Harris, the FX Chair, was invited by the Deacon at the Trades House of Glasgow to receive a cheque. The Bakers organized a charity...
Feb 19, 2025
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FX Ambassador - Olia Hercules
We are delighted to share with you the news that Olia Hercules has agreed to become an Ambassador for the Fragile X Society. Olia is a...
Jan 30, 2025
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Touch FX
Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...
Jan 21, 2025
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Gemma's Fundraiser for Fragile X
We would like to say a massive thank you to Gemma, Andy, their son and all of their friends who took part in the Sutton Coldfield fun run...
Jun 12, 2024
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Birmingham Conference 2024
We were delighted to see and welcome so many of you to our Fragile X Society Conference held at the Priory Rooms Conference in Birmingham...
Jun 6, 2024
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