Support. Connect. Shared Strength.

Help us continue to provide and develop free support and information to individuals, families and professionals impacted by Fragile X Syndrome.

Our Mission

The Fragile X Society aims to improve the lives of those affected by Fragile X and associated conditions by providing information and continued support to families and professionals they work with. Working together with those affected, the Society supports an inclusive community of people who understand the specific needs of Fragile X.

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Events & Activities


We are holding our Fragile X Conference at Midlands Arts Centre in Birmingham on Saturday 24 September (9.30am - 4pm).


Click here for further details and the agenda!  Bookings will open soon.  


Fundraising at Fragile X

The Fragile X Society rely on fundraising to continue providing vital services and support to those affected by Fragile X Syndrome

We depend on the kind support of people just like you, to help us continue our vital work. 

Latest News


The latest news about our charity, research and practical tips, as well as personal and fundraising stories.