General Resources​

Our collection of general resources offer further information about Fragile X Syndrome to support you and your family. These resources provide an introduction to Fragile X, including easy read guides with practical tips and strategies to help manage the condition.

 

If you cannot find the information you are looking for, please get in touch with our Families and Professionals Advisors for personalised support.

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Fragile X Syndrome: an introduction for families and healthcare providers

Gives a brief description of Fragile X Syndrome: how it is caused, its effects, diagnostic tests, and the support and information available from the Fragile X Society.

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Fragile X Syndrome: An Introduction

Explains the genetics of Fragile X and the importance of genetic counselling; the learning behaviour and relationship difficulties associated with Fragile X and how these difficulties may be helped; the different problems girls and women may experience, and the physical features associated with the syndrome.

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An Easy Read Guide to Fragile X Syndrome for Parents

An easy read guide to how children are affected by Fragile X and some practical tips for management, with sections on the cause of Fragile X, communication and Fragile X, learning and Fragile X, behaviour in children with Fragile X, sensory issues, and girls with Fragile X.

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An Easy Read Guide: 'I Have Fragile X Syndrome'

This publication looks at various aspects of Fragile X, providing an overview of its characteristics. It also includes some practical strategies for managing anxiety, making friends, meeting people, and learning.

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Online Course

Join our new online course aimed at professionals, the objective for which is to give people the ability to recognise the characteristics of the condition and to help identify ways to support people with Fragile X. The course includes real-life examples and involves interactive slides. 

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FraX-E, under-diagnosed, under-treated, under-researched and misunderstood?

Discusses the rare genetic condition of ‘Frax-E’, including the main clinical and behavioural features of the condition. In addition, three case reports are outlined. 

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Fragile XE & Me

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Alternative Formats

We are more than happy to provide alternative formats of any of our resources. Please request the format you need by emailing info@fragilex.org.uk or filling out our contact form.