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Support. Connect. Shared Strength.


Help us continue to provide and develop free support and information to individuals, families and professionals impacted by Fragile X Syndrome.

Our Mission

The Fragile X Society aims to improve the lives of those affected by Fragile X and associated conditions by providing information and continued support to families and professionals they work with. Working together with those affected, the Society supports an inclusive community of people who understand the specific needs of Fragile X.

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Events & Activities



We organise a number of events throughout the year, from our Family Weekend to our Conference.  Find out more.


Annual General Meeting 2024

​Virtual AGM to take place on Monday 16th September 2024. More details to follow.


Fundraising at Fragile X

The Fragile X Society rely on fundraising to continue providing vital services and support to those affected by Fragile X Syndrome.

We depend on the kind support of people just like you, to help us continue our vital work. 

Latest News


The latest news about our charity, research and practical tips, as well as personal and fundraising stories.

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