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Welcome to The Fragile X Society
We are the UK registered charity providing support, information and friendship to families whose children and relatives have fragile X syndrome. We are also here to help the many professionals who are working and caring for children and adults affected by fragile X.
Fragile X Syndrome is the most common known cause of inherited learning disabilities
Our website provides information about fragile X which we hope you will find helpful.
National Support and Information Service
Whether you are -
• a parent, relative, or friend of someone who has fragile X
• a carrier of fragile X
• affected by fragile X
• professional or carer
please call us on 01371 875100
email us by going to Contact Us
Journalists
Please contact us for:
• comment on breaking news
• information on fragile X
• families for interview
• fragile X experts for interview
• photographs
• video clips
Call Steve Harris, Press Officer
on 01371 875100
Fragile X Research
The Fragile X Society encourages research into fragile X through the participation of its family members in fragile X studies. To find out more about fragile X research in the UK go to Research.
Membership of The Fragile X Society
is FREE to:
• fragile X families
• carriers of fragile X
• people who are affected by fragile X
• and full time carers

If you have a professional/working interest in fragile X
you can join the Society as an Associate Member

Families and Professionals living outside the UK
join the Society as Overseas Members

To find out more about The Fragile X Society,
its support, services and membership go to
About The Fragile X Society
We hope you find our website helpful and easy to use.
Please email us with your comments by going to Contact Us

PLEASE NOTE: we are currently engaged in a complete rebuild of the site which will be available shortly. Not all functions of the site are currently available