Local Support Groups
Our family members and Support Workers run support groups in some areas of the UK.
These groups are open to all family members, who are or have been carers of individuals with Fragile X Syndrome.
Below, you can find details of support groups in your area.
Support Groups in the UK and Scotland
Groups are based in the areas below. They are open to anyone who can travel to them and are not, as their names might suggest, geographically bound.
Surrey Group. This group meets in Guildford at the organiser’s house one morning every month in term time. There are no facilities for children.
Essex Group. This group meets one Friday per month in term time from 10.30-12.30 in Chelmsford at a venue near to both the train and bus station. There are no facilities for children.
Yorkshire and Lancashire Group. This group meets on an ad hoc basis every few months, usually in the evening at a pub near a motorway junction to facilitate travelling.
Co. Durham Group. This group meets on an ad hoc basis and organises family days out and evenings out for parents.
Glasgow Group. This group covers Glasgow and surrounding areas, so if you are willing to travel a little you can join us. There are no facilities for children. For more information please contact Sandra: , or 07825 050072
If you are interested in joining any of these groups please contact Wendy on 01371 875100, by email at (or Sandra for Glasgow group ONLY - details above), or via Contact Us to be put in touch with the organiser.
If you are interested in starting a group in your area and just want to know what is involved and the help that the Society can offer, please contact Wendy on 01371 875100, by email at , or via Contact Us