I:DNA project: online event, 11 November at 4pm
Last year, Professor Felicity Boardman and colleagues from Warwick Medical School undertook some research on the views of families living...
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Research News
The latest findings from research projects we have supported, as well as research projects from around the world.
Fragile X Society
- Sep 28, 2020
- 2 min
Helping people affected by Fragile X Syndrome to participate in medication trials
Understanding the factors which affect whether people with Fragile X Syndrome take part in clinical trials.
Fragile X Society
- Aug 10, 2020
- 2 min
I:DNA project: filmed interview opportunity
Professor Felicity Boardman is seeking Fragile X families to participate in a filmed interview about life with Fragile - can you help?
Fragile X Society
- Jul 14, 2020
- 4 min
Social Interactions in Children with Fragile X Syndrome and Other Neurodevelopmental Conditions:
Social Interactions in Children with FXS and Other Neurodevelopmental Conditions: a research update
Fragile X Society
- Jul 2, 2020
- 3 min
Attention, Learning and Memory in young people with fragile X syndrome: Does social context matter?
Attention, Learning and Memory in young people with fragile X syndrome: Does social context matter?
Fragile X Society
- Jan 30, 2020
- 4 min
Fragile X Premutation Associated Conditions (FXPAC) Statement
A European Fragile X Network meeting discussed the term FXAND and recent research on conditions affecting Fragile X premutation carriers.
Fragile X Society
- Nov 28, 2019
- 13 min
The Fragile X Community's Views on Screening
Recently, Dr Felicity Boardman and colleagues from Warwick Medical School conducted a study to investigate the implications of genetic...
Fragile X Society
- Nov 26, 2019
- 1 min
Are you interested in participating in a research project? If so, we'd love to hear from you!
We have been supporting Dr Nermin Khalil in recruiting for her study, “Cognitive Emotional Dysregulation of FMR1 Premutation Carrier...
Fragile X Society
- Sep 17, 2019
- 1 min
Understanding and Intervening with Emotional Outbursts: Research Update, Dr Kate Woodcock
In this Research Update, Dr Kate Woodcock discusses the work of her research group which aims to understand syndrome specific factors...
Fragile X Society
- Sep 17, 2019
- 1 min
Assessing Anxiety in Fragile X Syndrome: Research Update, Dr Jane Waite
In this talk from the 2019 Fragile X Conference (7th September, University of Birmingham Medical School), Dr Jane Waite gives an update...
Fragile X Society
- Sep 17, 2019
- 1 min
Gene Editing and Fragile X: The Status of Research and What the Future Might Hold.
‘Fixing’ genes using editing has been getting lots of press, for both good and bad reasons. But as a potential alternative to a...
Fragile X Society
- Sep 17, 2019
- 1 min
Fragile X Syndrome and Adulthood: Talk by Dr Andy Stanfield
We were delighted to welcome Dr Andy Stanfield (Patrick Wild Centre, University of Edinburgh) to speak at our 2019 Fragile X Conference...
Fragile X Society
- Jul 19, 2019
- 3 min
Are there changes in brain function in carriers of Fragile X, who do not have clear FXTAS symptoms?
Functional MRI in carriers of the FMR1 premutation: Study results from University of Edinburgh and the Patrick Wild Centre In 2013 to...
Fragile X Society
- Apr 11, 2019
- 4 min
New Cardiff Research Group Aim to Develop Medications for Fragile X Syndrome
The recently-established Medicines Discovery Institute is based within Cardiff University and aims to translate the latest in scientific...