Supporting Individuals and Families Affected By Fragile X
Support for Individuals and Families
Our Families and Professionals Advisors can be contacted by families with a confirmed diagnosis and by families concerned that fragile X may be the cause of a family member’s difficulties.
By contacting them directly you can get information more tailored to your individual need and time to speak to a person with an understanding of the syndrome alongside the difficulties and triumphs that can present for carers. We have information on many aspects of fragile X including behaviour, communication, education, guides to filling in disability benefit forms and carrier issues.
Whatever your need please do give us a call or send us an email and we will do our best to help or point you in the direction of someone better placed to give that help.
Families can also join our Fragile X closed Facebook page aimed at people with a personal link to Fragile X (for instance, they or a family member are affected by Fragile X).
Support for Professionals
Our Families and Professionals Advisors can be contacted by professionals working with individuals affected by fragile X including school and college staff, care and support workers, health care professionals, social workers and care managers by email or telephone. By contacting them directly you can get information more tailored to your individual need.
The Fragile X Society is here to provide information and support to individuals and families affected by Fragile X Syndrome, as well as the professionals working with them.
Through our membership, free helpline service, newsletter, support workers, online publications, or Facebook and Twitter pages, the Fragile X Society team are here and happy to help you. Please do get in touch.