Meet Our Families and Professionals Advisors
Whether you are a person living with Fragile X Syndrome, a family member, carer or professional, our Families and Professionals Advisors can offer lots of information on a range of issues relating to Fragile X Syndrome, such as education, speech, language and communication, behaviour, and sensory issues. We can also offer support in other areas such as, filling in claims for Disability Living Allowance (DLA), Personal Independence Payment (PIP) and Employment and Support Allowance (ESA).
We would like to stress that all requests for support and information are treated with strict confidentiality.
Sue - Adult Enquiries
Sue is the Society's Families and Professionals Advisor dealing with adult enquiries for individuals and families.
Sue brings a wealth of knowledge and experience from her background as a senior social worker, supporting adults with learning disabilities and their families.
Sue will be providing advice, information and support to adults with Fragile X syndrome, their families, carers and professionals, helping them navigate the challenges they may face.
You can contact Sue on 01371 875100 or by email at sue@fragilex.org.uk. Alternatively, you can reach out for Sue's support by filling out the website contact form.
Alison - Child Enquiries
"Having been a teacher for the past 10 years and prior to that, working as a nursery practitioner, I have been part of SEND reviews, EHCP applications as well as meetings with educational psychologists, specialist teachers, speech and language therapists and physiotherapists. I have worked with SEND coordinators to write letters to paediatricians detailing children’s support, strengths and difficulties. I really look forward to growing and developing my knowledge base and supporting Fragile X Society families within this role.”
You can contact Alison on 01371 875100 or by email at alison@fragilex.org.uk. Alternatively, you can reach out for Alison's support by filling out the website contact form.