Meet Our Families and Professionals Advisors
Caroline - Child Enquiries
Caroline is the Society's Families and Professionals Advisor managing enquiries relating to children with Fragile X.
Caroline joined the Fragile X Society in 2018, but has worked in the voluntary sector now for over 25 years supporting families.
Caroline looks forward to hearing from you, either via the telephone on 01371 875100, the website contact form or via email at .
Jane - Adult Enquiries
Jane is the Society's Families and Professionals Advisor dealing with adult enquiries for individuals and families.
Jane has been a carer support worker for a county wide carer organization offering support and information to unpaid family carers. She worked for over 12 years as a day service worker in a community based day service for adults with learning disabilities. She worked as a 1:1 worker supporting adults with mild to profound learning disabilities to access their local community and through Person Centered Planning have their say in how they would like to live their lives with the right support and service provision. Both roles have given her experience in liasing with statutory agencies such as Adult Care Services, Health and other organisations from the voluntary sector.
Jane looks forward to hearing from you, either via the telephone on 01371 875100, the website contact form or via email at
Please contact them by phone or email
Whether you are a family member, carer or professional we have lots of information on a range of issues including education; speech, language and communication; behaviour; and sensory issues. We can also offer support in other areas e.g. filling in claims for the Disability Living Allowance (DLA), Personal Independence Payment (PIP) and Employment and Support Allowance (ESA).
Finally, we would like to stress that all requests for support and information are treated with strict confidentiality.