We have launched a new Facebook group to share information about research into Fragile X, including: Fragile X Syndrome, FXTAS, FXPOI and the Fragile X premutation more broadly. Our hope is that this group will facilitate dialogue about research and promote awareness of opportunities to input into or take part in research.
Who is the group for?
It is for researchers, families and anyone interested in research into Fragile X syndrome and the Fragile X premutation.
What is the group for?
The group will provide a forum for discussion of the latest research and a space for conversations about what research families would like to see.
We will also post information about all the research projects that have been approved by the Fragile X Society research committee which will enable researchers and family members to interact directly and ask and answer any questions about participation.