We want to know what you think!

We need your help!

It is really important to us that we provide the best support possible to you. In order to do that, we want your feedback as to what has helped and whether there is anything we could develop or do differently in the future. This information is also really important for helping to show funders that what we are doing is needed and that it helps to make a difference and whether there are any areas that we can develop with new projects.

We have developed these surveys to get feedback from you. They will take about 10-20 minutes to complete- so, go and grab yourself a cup of tea and help make a real difference today by giving us your thoughts!

There are two versions of the survey:

1. Survey for families or individuals with Fragile X (click here)

NOTE: We realise that this survey will not be accessible to many people with Fragile X Syndrome. We really want to get feedback from people with Fragile X about what has helped or what they would like help with so that we can develop the support we provide directly to them. If people are interested in speaking with us, but are not able to fill in a questionnaire, we are able to set up telephone or, depending on location, face-to-face interviews to help people share their views. Please contact us if you would like to discuss this.

2. Survey for professionals (click here)

Thank you for your time!

If you have any questions, please email info@fragilex.org.uk or call us on 01371 875100

Copyright © 2020 The Fragile X Society

 

Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England

Charity Registration SC047332 - The Fragile X Society Registered Charity in Scotland
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA