Updated: Apr 3, 2019
Jonathan Cohen (Medical Director, Fragile X Alliance Clinic), Rashelle Cohen (Neurodevelopmental Optometrist), Michael Cohen (Expert by Experience)
We were delighted to host this event, in partnership with the Patrick Wild Centre. We had a fantastic mix of families and professionals attend the event in Edinburgh, as well as people from around the world joining us for the live stream.
Topics Covered Included:
Fragile X Syndrome in Adulthood:
Issues facing men and women with Fragile X Syndrome; behaviour in adulthood; experiences of working with adults in a multidisciplinary clinic;
Accommodation, employment, training & independence.
Michael Cohen will also give a personal perspective on living with Fragile X Syndrome.
Fragile X Carrier Issues
An overview of the latest information on the clinical effects for men and women who carry the Fragile X Premutation
Discussion about screening
For those who could not attend- don't worry! You can catch up with the talk online. All you need to do is click on the player below. Alternatively, you can watch or download via this link.
Note: Unfortunately the final 5-10 minutes of the talk were not captured in the recording. For further information, please contact us