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Fragile X Groups Overseas
We are a proud member of the International Fragile X Alliance a network of organisations dedicated to:
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information exchange for existing national family associations/groups
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guidance in the formation of new national associations/groups
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better help for families already diagnosed with Fragile X through new and more effective organisations
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sharing experiences to improve the ability of clinicians to make the proper diagnosis and treatment of Fragile X
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helping to establish comprehensive and consistent standards for clinical care, therapies and treatment
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enhancing education and training for families and professionals who are affected by and/or interested in Fragile X
The IFXA website has a list of organisations around the world. If you would like to find out more about Fragile X support in a particular country, contact us and we will reach out through our networks to help you!
We are also proud, founding members of the European Fragile X Network. To find out more, visit the EFXN website.
