Kunal's Story - "How Fragile X Affects My Life..."
Who I am
My name is Kunal.
I am a 29 year old man.
I have Fragile X Syndrome.
This affects my life in lots of ways.
What is Fragile X?
Fragile X Syndrome causes learning disabilities.
It is inherited.
All different types of people have Fragile X.
People didn't realize the problems that Fragile X can cause until 1977.
How does Fragile X affect my life?
I have a short attention span.
I can be easily distracted.
I am restless and can rush around.
I don't like waiting for things.
I sometimes have difficulty understanding other people's points of view.
I find it difficult to cope when it is busy. I can get upset and angry.
I repeat words and expressions. I don't always know what these mean.
I copy expressions that make people laugh.
I can be really enthusiastic about things.
I will work very hard at something I enjoy.
How to help me cope
I need tasks broken down into 15 minute segments. This helps me to concentrate better.
I need to have a quiet area to go without much noise or things going on.
I need people to understand how Fragile X affects my life. They need to support me according to my needs. This is called a 'person centered approach'.
Thank you for reading my story.