Copyright © 2018 The Fragile X Society

 

Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England

Charity Registration SC047332 - The Fragile X Society Registered Charity in Scotland
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA

 

Kunal's Story - "How Fragile X Affects My Life..."

 

Who I am

 

My name is Kunal.

I am a 29 year old man.

I have Fragile X Syndrome.

This affects my life in lots of ways. 

 

What is Fragile X?

 

Fragile X Syndrome causes learning disabilities. 

It is inherited. 

All different types of people have Fragile X. 

People didn't realize the problems that Fragile X can cause until 1977. 

 

How does Fragile X affect my life? 

 

  • I have a short attention span.

  • I can be easily distracted.

  • I am restless and can rush around. 

  • I don't like waiting for things. 

  • I sometimes have difficulty understanding other people's points of view. 

  • I find it difficult to cope when it is busy. I can get upset and angry. 

  • I repeat words and expressions. I don't always know what these mean. 

  • I copy expressions that make people laugh.

  • I can be really enthusiastic about things. 

  • I will work very hard at something I enjoy.

 

How to help me cope

 

  • I need tasks broken down into 15 minute segments. This helps me to concentrate better. 

  • I need to have a quiet area to go without much noise or things going on. 

  • I need people to understand how Fragile X affects my life. They need to support me according to my needs. This is called a 'person centered approach'. 

 

Thank you for reading my story.