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    • Home

    • About Fragile X

      • Fragile X and Autism
      • Diagnosis
      • Genetic Testing
      • Carriers
      • Personal Stories
      • Resources
    • Help & Support

      • Membership
      • Snippets of Advice Blog
      • Case Studies
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    • Get Involved

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      Search
      • Oct 24, 2018

      "I know I’m not great with money and I need help to keep on track. What do I need to learn abou

      Hi Girls, The first step is to figure out the usual costs of the things that you like the most (searching the internet works well). The...
      21 views
      • Oct 24, 2018

      "I like going on my phone but Mum worries about me going on different web sites and whom I’m ta

      Hi Girls, How do you feel about this? Are you worried about the websites you visit or who you are talking to? It’s important to know what...
      14 views
      • Oct 24, 2018

      "I worry that my daughter is vulnerable because she would agree to anything to be part of a gro

      Hi Girls and Mums, Girls, part of being a Mum is feeling really worried that your children are not safe, but also, feeling really worried...
      17 views
      • Oct 24, 2018

      "I really don’t like it when something changes. How could I manage this better or should I just

      Hi Girls, Letting people know that this is hard for you is a great idea, just so they are not surprised that you’re not feeling to great...
      2 views
      • Oct 24, 2018

      "I can’t seem to prioritise things and I end up doing the wrong thing first. Or I don’t realise

      Hi Girls, Here’s a quick way to remember priorities: The first priorities are always the things that PROTECT you (your body, your...
      7 views
      • Oct 24, 2018

      “Sometimes I get asked to do something, but I just can’t get myself organised. I often find I haven’

      Hi Girls, Something I’ve noticed is that sometimes when we humans feel like something is “work”, or even call it “work”, we automatically...
      6 views
      • Oct 24, 2018

      "My daughter makes things up about other people and themselves. I'm not really sure what to

      Hi Mums, This is not uncommon, and can be frustrating, confusing, and worrisome, but it’s okay! You’re not alone in this concern, and...
      11 views
      • Oct 24, 2018

      "My daughter is so isolated and lonely, but she is so shy she can’t get over this hurdle."

      Hi Mums, There is a lot of information circling around in discussions about parenting that warn of the downsides of technology, but...
      10 views
      • Oct 24, 2018

      “I know I take things too literally and I don’t understand what is expected of me.”

      Hi Girls, That’s definitely going to happen sometimes, seeing that your brain is trying really hard to make sense of a busy, confusing...
      436 views
      • Oct 24, 2018

      “I get worried that people don’t like me” “I’m worried that I’m not good enough”. “I get upset about

      Hi Girls, The first thing to remember is that everyone has thoughts like this. It’s kind of a funny thing about being human— we want to...
      33 views
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