About Fragile X
How We Help
In this section of the website we will keep you up-to-date with research findings, reports from our conferences, and other fragile X-related information. At the Society, we believe that research is vitally important.
What is the project?
An exciting project which aims to develop a new system to help families address rigidity in their child’s routines and expectations. While maintaining the optimal level of structure to minimise
challenging behaviours related to change.
Why are we doin...
A Race to Raise Awareness
April 18, 2019
Our Fragile X Facts
March 14, 2019
Making changes to routines, plans or expectations more manageable: A new 'Flexible Scheduling' research project
March 8, 2019
A funny thing happened on the way to Homebase
March 7, 2019
Dancing to fight FXTAS
Video: Identifying and meeting the health needs of people with Fragile X Syndrome
February 13, 2019
Celebrating Our Achievements in Scotland, as the Project Comes to an End.
January 29, 2019
"You become more understanding of other people's difficulties": Lou's experiences of being a Fragile X premutation carrier.
January 24, 2019
"It's just daily life": Brianna's experiences of being a Fragile X premutation carrier.
"Knowledge is Power": Grace's experiences of being a Fragile X premutation carrier