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Research News

 

In this section of the website we will keep you up-to-date with research findings, reports from our conferences, and other fragile X-related information. At the Society, we believe that research is vitally important. 

Hi Girls,

The first step is to figure out the usual costs of the things that you like the most (searching the internet works well). The next step is to figure out how often you run out of those things, or how often you would like to buy them. Then, you need to figure ou...

Hi Girls,

How do you feel about this? Are you worried about the websites you visit or who you are talking to? It’s important to know what to look out for. Keep in mind: no stranger you are talking to online has a good reason to expect you to send them anything besides w...

Hi Girls,

This is also something that’s confusing for a lot of people. The first thing to sort out is what you want a friend to do in your life. Are you looking for someone to have fun with? Are you looking for someone to tell secrets to? Are you looking for someone to...

Hi Girls and Mums,

Girls, part of being a Mum is feeling really worried that your children are not safe, but also, feeling really worried that your children are not happy. Part of the stress you may feel when you’re around Mum is how much she wants you to be happy but s...

Hi Girls,

Letting people know that this is hard for you is a great idea, just so they are not surprised that you’re not feeling to great after a change that they might not have noticed or been bothered by themselves.

That said, the best thing to do to prepare for these s...

Hi Girls,

Here’s a quick way to remember priorities:

  • The first priorities are always the things that PROTECT you (your body, your feelings, your mind). That means things like hygiene, feeling calm and ready, and understanding what you’re doing are the first prioritie...

Hi Girls,

Something I’ve noticed is that sometimes when we humans feel like something is “work”, or even call it “work”, we automatically think it’s something that is going to take a lot of energy, be boring, and be a challenge to get through, so of course we get distra...

Hi Mums,

This is not uncommon, and can be frustrating, confusing, and worrisome, but it’s okay! You’re not alone in this concern, and your daughter is not alone in this tendency.

The first thing to remember is that our girls are exceptionally perceptive of emotion. That...

Hi Mums,

There is a lot of information circling around in discussions about parenting that warn of the downsides of technology, but sometimes we forget about the upside! Getting some social conversation going through the use of technology can take off the pressure of ou...

Hi Girls,

That’s definitely going to happen sometimes, seeing that your brain is trying really hard to make sense of a busy, confusing world all the time.

My best advice is that after someone gives you a new instruction (maybe about something you’ve never been asked to d...

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March 14, 2019

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