Information about Fragile X


Fragile X Syndrome is the most common known inherited cause of learning disabilities, affecting around 1 in 4000 boys and men and 1 in 8000 girls and women. It can cause a wide range of difficulties with learning, as well as social, language, attentional, emotional, and behavioral problems.


In addition, approximately 1 in 250 females and 1 in 600 males are carriers of the Fragile X premutation. Some carriers may develop symptoms, including Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS), Fragile X Primary Ovarian Insufficiency (FXPOI) or other Fragile X Premutation Associated Conditions (FXPAC). Therefore, Fragile X consists of a family of genetic conditions.  


One of the aims of the Fragile X Society is to provide support to families affected by Fragile X, through providing information about the conditions. Therefore, we have a broad range of information available to you. The links below will direct you to some of the main areas. 




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Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England

Charity Registration SC047332 - The Fragile X Society Registered Charity in Scotland
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA