Copyright © 2018 The Fragile X Society

 

Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England

Charity Registration SC047332 - The Fragile X Society Registered Charity in Scotland
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA

 

We need your help to raise awareness of Fragile X!

Fragile X Awareness Day 2019: 10th October 

Every year on 10th October (XX in roman numerals!), along with our friends from the European Fragile X Network, we mark Fragile X Awareness Day, in order to help improve recognition and understanding of Fragile X Syndrome and Fragile X-Associated Conditions. 

A lack of awareness and understanding of Fragile X causes significant barriers to people accessing diagnoses, as well as access to the most appropriate support. We want to change this and we need your help. 

There are many ways that you can get involved on and around 10th October, to help inform more people about Fragile X. 

How you can get involved! 

  • Follow us on Facebook, Twitter and Instagram and share our posts and facts about Fragile X with your friends and family

  • Share your story: one of the most powerful ways to raise awareness is to talk about your experiences of Fragile X

    • We are planning a very special video to share on awareness day and we need your contributions! Find out more here.

  • Host an event! Whether it is a bake sale at your lunch break, a run wearing one of our tshirts, or any other ideas you have... every little really helps to make more people aware of Fragile X.

    • Simply fill in the form below to request your free awareness pack containing posters, banners, wristbands and awareness cards, to help you with your event! 

  • Create a Facebook fundraiser. It not only raises support for the work we do, it is a natural way to make others aware of Fragile X. 

Please let us know what you are up to for Fragile X awareness day by getting in touch on our social media, emailing us or giving us a call (01371875100), we would love to promote it, as well as to say a big thank you! 

Together we can help more people recognise and understand Fragile X, to improve support for all those living with Fragile X Syndrome and Fragile X-Associated Conditions. 

Request your Free Awareness Pack