Challenging behaviour may be one of the biggest tests facing those who care for people affected by fragile X.
This document has kindly been provided by a family and was written for them by a clinical psychologist, Margaret Harlin from NHS Grampian, and her various assistants and colleagues. This strategy was written as a way of managing challenging behaviour in the least restrictive way possible. The focus of the strategy is avoiding challenging behaviour, as a priority. The strategy includes different options for different levels of behaviour and for different locations.
The family found the strategy to be extremely useful and it may provide some helpful tips for managing behaviour. However, talk to your own professional (social worker, doctor or psychologist) before using it as it will be different for every individual to greater or lesser extents. No two individuals are identical, but this may be a good starting point for you if you are without support or haven’t thought about this sort of tool.
Our family support workers will also be able to give you further advice on managing challenging behaviours